Les mots Mme Elizabeth WOOD, présidente de la fondation américaine The MYT1L Project.

Liz explique le contenu du site web où vous trouverez tous les éléments concernant leur histoire, leur création notamment :

"At the MYT1L PROJECT website, you will find:

• Information about MYT1L Syndrome, including symptoms, treatments, and the different genetic differences that cause it

• Photos, videos and parent testimonials

• A tribute to our beloved MYT1L elephant logo (kindly shared by Valérie Salomone, its creator)

• Information about ongoing ASO research at Washington University to identify a gene-based treatment for MYT1L (and a Donate button to help support it)

• A comprehensive list of scientific publications about MYT1L

• A summary and layperson’s description of areas of current research

• A pie chart showing the geographic distribution of our Facebook community

• A Donate button for U.S. tax-deductible contributions supporting capacity building and ASO research

• Our mission statement, history, board of directors, and scientific advisory group

• Listings of upcoming virtual and in-person gatherings

• And more!

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Our foundation will work in close collaboration with our partner in France, Les Extra-Vaillants MYT1L, to unite families and researchers around the world toward a brighter future for children and families impacted by MYT1L differences."